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Babbly Babbling Chittery Chatting Talk Talk Talk Talk Talk

So finally, here is the long-awaited post about Little D’s speech delay.  Actually, this is a long-awaited post in general because I. Am. The. Worst. Blogger. Ever.  It seems I can only write blog posts when I am very tired and slap happy.  That would explain all the silliness.

Anyway, so Little D has a significant speech delay.  I know what you are thinking.  You are like, “Wait!  He has severe food allergies? And probable Celiac?  And asthma?  And refuses to eat most foods?  And a speech delay?  WHAT is up with your child?” 

I know, right?!  , I have no idea why he has so many issues.  I guess he lost the baby-good-genes lottery.  But before you feel too bad for us, Hone always says, “Yeah, but he won the most important lottery of all.  He got you as a mom.”  Awwwwwwwwwwwww!  Sniffle.

ANYWAY, so Little D did all the babbling that little babies do at all the appropriate ages and such.  But when he got to be about a year he seemed a little behind.  No reason for worries.  I mean, developmental age ranges are ranges and so we thought he was likely a late talker.  He understood us just fine and was starting to sign up a storm.  But then 18 months rolled around and he had 2 spoken words.  Then 2 years rolled around and he had 4 spoken words.  He had over 200 ASL signs and communicated very well with sign language but no speech.  So we started looking for a speech therapist. 

Our first therapist seemed super awesome.  She was all, “I don’t push kids”  and “diagnoses are less important to me than how the kid is doing” and “blah dee dee blah dee blah”.  I liked this at first but then quickly realized that her “philosophy” seemed more about not having any accountability.  AND she also seemed to have a skewed view of who I was as a mom.  Like, when she found out we weren’t doing preschool (and planning to homeschool) she seemed convinced that I was some sort of crazy shut-in, forcing my poor little child to watch the world from behind the windows of our home, never to interact with a single soul.  I was like, “Dude, we do playgroups and are out and about all the time.”  But whatever.  She was one of those perfectly put together moms with the tan and the highlighted hair and the matching outfits.  I am . . . not. 

We met with her a few times and it had absolutely no impact on Little D.  THEN she pissed me off when I wrote her this message telling her that Little D had spontaneously said the word “night”  and wasn’t that wonderful and she was all  “you need to be around other kids so you can see where his speech should be and so you and he can socialize.”   I was like, “We hired you as a SPEECH THERAPIST, clearly we realize his speech is not where it should be! You are not the right fit for us,”  and went in search of a better person. 

And I found one.  OMG, our current speech therapist is truly awesome.  Not only is she completely fluent in ASL (she works with a lot of hearing impaired kids) but she is also trained to work with kids with apraxia.  And she figured out that Little D has apraxia almost immediately.  Now technically it is hard to diagnosis it before the age of three.  But she has had a ton of experience with kids with apraxia and she is very sure Little D has some form of it.  AND she started approaching speech therapy with him as if he did and guess what?  In 6 weeks he went from 4 spoken words to over 100.  Yeah.  YEAH.  Now here we are four months into speech therapy with her and I’ve stopped counting his words.  He talks all the time.

BUT here is the thing.  Apraxia is strange.  Basically, and this is a very simplified unscientific description of it, Little D’s brain is missing some connections.  Specifically, the connections that are involved in oral planning.  It is very hard for him to get the shape of a word right.  He has to grope around and listen to his own voice AND be guided in how to shape his mouth to get a specific sound.  Obviously, this last part is hard for a 2.5 year old.  So, speech therapy is going to get easier and easier as he gets older and can consciously direct his own speech.  So when I say he has many many words now and talks all the time, it’s all relative.  He’s still very much behind most kids his age.  Very often we have to look at the context of his words and the intonation to guess at what he is saying.  But it is amazing how well that works.  Two weeks ago he was saying  “tagid” for “guitar” and just today he said “dig-ga.”  It may not seem like much but it shows how his approximations are getting more accurate.  And he does have a lot of clear words.  He rocks out with any words that rhyme with “pear” and says “bubble” and “purple” perfectly.  But generally, for him, learning to speak is going to be about habituating words.  He will just have to practice and practice and practice until that forges a little connection in his brain kind of by brute force as opposed to the more automatic way that most kids learn.  And the good thing is that his receptive language is totally on track.  I think all his signing helped with that.

So here is a teeny tiny video snippet of a speech therapy session.  In it you’ll see our speech therapist using the PROMPT technique which helps a lot with kids with apraxia.  It is based on the idea that you can cue kids on what muscles and parts of their mouths they use to make certain sounds and this helps them get a word.  In this snippet she is working on the “n” sound.  The cue for that is to touch Little D’s nose to show him that the “n” sound comes from his nose.  The super cute thing about Little D is that he totally uses these cues himself and you’ll see it in the video that he grabs his own nose.  This is from a few weeks ago when he was just starting to get the “n” sound.  Today for the first time he said, “onnnnnne”  and “ninnnnne” when he was counting.  He has not used the “n” sound in either of those words without prompting before.  Progress progress!

7 comments to Babbly Babbling Chittery Chatting Talk Talk Talk Talk Talk

  • Hi, Joanne - After dealing with an allergic/asthmatic child and reading a ton on alternative & complimentary therapies, I discovered it isn’t unusual for a child to have a whole range of issues that work together. In Chinese medicine, the lungs and large intestines are paired,so if there is trouble with one, the other will be affected. The fact that Little D has celiac and asthma doesn’t seem that surprising from a traditional Chinese medicine perspective.

    This article briefly talks about paired organs: http://chinese-medicine.suite101.com/article.cfm/the_hollow_internal_organs_and_tcm

    I’m so glad you’ve found a speech therapist who’s helpful. I’ve become skittish of medical professionals in general after dealing with our eldest son’s allergy issues. Some doctors, esp. conventional ones, like to look at you as though you have two heads when you stand up for yourself and indicate that you’re cool with alternative therapies.

    Happy to hear that Little D is making progress on his speech. Go, Little D! And Hone is right about him winning the most important lottery.

  • Hooray! What a great update! I am so glad you found the awesome new therapist and WAY TO GO Little D for making so much progress, too. So great!

    I am pretty sure my husband had apraxia! I know he didn’t talk until 3-4 when he was taught how to form sounds at an Easter Seals preschool. Now, I can’t get him to shut up sometimes! He does say when he’s really tired, he sometimes has to think about it more.

    Here’s to more and more progress! You are a great mama!

  • I’m really glad you find a good speech therapist - I’ve had the same response that Finn’s slowness to warm up in groups and difficulty with classes is all because we haven’t socialized him enough. I have some choice words for those people.

  • Joanne

    Mary, (a bit late with my response!) that Chinese medicine link is very interesting. I do think Little D’s issues are related. I remember reading somewhere that apraxia and food allergies often occur together. Hmmmmm. Oh and one of the most promising allergy treatments on the horizen is an herbal Chinese formula that may stop anaphylactic reactions! It’s in clinical trials right now. I have my fingers crossed.

    Thanks, Kristin! That is interesting about your husband and reassuring to hear. Our ST says that when Little D is older it should not be noticible that he ever had a speech delay, although he may have to practice new complicated words now and then.

    Sacha, I am right there with you! I hate that our society in general is so obsessed with assertiveness and extroversion. I was a painfully shy child myself and it seemed to be all that anyone ever focused on (not my parents who were very supportive but all the other people in our lives). It frustrates me!

  • Woah, just came back and had to comment about the apraxia/allergy link. Um, severe dairy and cow allergy (plus a ton of others, mostly not food though)? Check. I think I might have to look into this further now because I am curious!

    That is really great about that allergy treatment, as well! Even though my husband has these bad food allergies (adult onset), he has never seen an allergist about it! I wish he would, just in case some treatment like this is ever an option for him…

  • Whoops, I meant dairy and BEEF allergy, but I suppose cow (and also goat/sheep/any gamey animal) does just about cover it. Ha.

  • Hey Joanne,
    Thanks for leaving a comment on my blog! I loved seeing this video — so sweet. It’s great that you went in search of a therapist who was a better fit.

    Take care — maybe I’ll meet you in person someday! :)

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